Monday, 1 June 2015

Chiari and Syringomyelia awareness Month (and an elephant?)!

Hello and Welcome to the first National (UK) Chiari and Syringomyelia awareness Month!

This month I am dedicating my blog to my medical “story”. Well, not strictly medical but everything that surrounds the medical issues that I have. This does not mean everything will be doom and gloom! I will pretty much open up and go through the highs as well as the lows. If any of you has got or know someone with a chronic illness, you will know the roller-coasters that you inevitably end up on along the “journey” (urgh – awful word but I think it will be over used this month. Sorry peeps).

I hope to continue with the LYBS posts. I had a break last month because things got a bit heavy with an important hospital trip and various stuff but I’m hoping that I will be a lot more organised this month! *fingers crossed*- I already have some posts typed up and ready to schedule in (get me)!

Due to the nature of the ‘issue’ this month there will be the following disclaimer on all of my blog posts that I feel are a little nitty-gritty so to speak (and any others that I may write in the future involving “news” on my medical issues).
**Disclaimer: I will not disclose the names of hospitals / professionals involved in my care. Please be aware that everyone is different and this blog is not written with the intention to scare, upset or influence the choices that anyone is potentially making at the moment. – This is an honest account and reflection of my personal medical experience. **

As I have previously mentioned, this month is the first EVER Chiari and Syringomyelia awareness month in the UK and to mark the occasion I have decided to make (yep, you read that right) MAKE a cuddly toy Elephant! (It was the most popular choice when I asked on the trust forum and my family and friends).

Here’s how it will work.
If you would like the chance to win a special hand-made (by me) cuddly Elephant please click here and make a donation. (Every penny will help) and for every donation made, I will be making a small heart – these will be stuffed into the Elephant.  In the comment section please state that you would like to be in with the chance to win. *please note that anyone that wishes to remain anonymous will unfortunately NOT be entered into the draw*. The draw will be made on Wednesday 1st July 2015 at 7pm GMT. REMEMBER, YOU MUST LEAVE YOUR NAME IN ORDER TO BE IN FOR A CHANCE OF WINNING!  (If possible let me know on my (new) facebook page The Little Golden Daffodil and leave me a message so that I know that it’s you who has left the donation or tweet me @hangoldendaff with #junoelephant).

All of the money raised will be going to the Ann Conroy Trust. Let’s raise as much money as we can for such an amazing charity!

Please do not judge, be kind, love and support each other. Remember, not every illness is visible to someone on the ‘outside’ and more often than not, people suffer in silence.

Remember: you can find me on

Love and hugs.

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